The adult with Sickle Cell Disease
Source: www.sicklecell.md
Topic: Sickle Cell Disease
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Sort Desciption: The adult with Sickle Cell Disease medical themes f one only had textbooks in medicine, or if one relied only on media comments, one would be led to believe that no sickle cell disease patients ever lived into adulthood. ...
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The adult with Sickle Cell Disease medical themes f one only had textbooks in medicine, or if one relied only on media comments, one would be led to believe that no sickle cell disease patients (Ache/Ache like SS, SC, S beta Thalassaemia, etc) ever lived into adulthood. They all die before the age of 20 is what we are continually told. Even the internationally respected British Medical Journal had this to say recently in an editorial entitled Genetics and developing countries: We are unlikely to learn more about any disease than we already know about sickle cell disease. We know the gene and its mutations, the protein and its structure, and the mechanism of loss of function, yet we can do little for patients Barry R Bloom and Dang Duc Trach, 28 April 2001, BMJ Volume 322, pp 1006-1007 . So we can do little for patients? How come the 53-year-old pro fe ssor of botany, University of Cape Coast, who is SS (Ache/Ache) did not die at the age of 18? How come the 52-year-old dean and professor of the Faculty of Law, University of Ghana, a former Oxford post-graduate, a known SC (Ache/Ache) and mother of three brilliant adults, is still doing very well if there is little we can do for these patients? No, these forecasters of doom are wrong even when they are professor & dean of the Harvard School of Public Health as Barry R Bloom is. They confuse treating a patient with curing a disease. Let me explain. Sickle Cell Disease, like the other he r edita r y conditions haemophilia and diabetes, cannot be cured but does that mean there is little we can do for these patients? Why are the experts so wrong about the prognosis (the survival outlook), of the person with sickle-cell disease (Ache/Ache)? ANSWER: Because they do not distinguish between sickle cell disease and the sickle cell disease patient. Sickle cell disease is pathology; it is round cells turning spiky in the blood and causing blockages; depriving vital tissues and organs of blood, ...
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