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Feature Article The Cognitive and Academic Impact Of Sickle Cell Disease

Source: www.sicklecelldisease.net
Topic: Sickle Cell Disease
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Sort Desciption: The Journal of School Nursing Volume 22. Sickle cell disease (SCD) affects over 30,000 students in the United States. Central nervous system complications are widespread among students with SCD and include stroke, ...

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The Journal of School Nursing Volume 22, Number 6 December 2006 Feature Article The Cognitive and Academic Impact Of Sickle Cell Disease Sara Day, RN, MSN; and Elisabeth Chismark, RN, MSN ABSTRACT: Sickle cell disease (SCD) affects over 30,000 students in the United States. Central nervous system complications are widespread among students with SCD and include stroke, silent cerebral infarction, and cognitive impairment. The effects of these complications may lead to academic failure, limited career options, and for some, total disability. Despite studies describing the signicant academic and cognitive impact of sickle cell disease, reports describing interventions are limited. There is a lack of awareness among educators of the academic risks associated with sickle cell disease and a lack of appropriate resource allocation. The school nurse, as community health advocate, will be called upon to bridge the gap among healthcare providers, parents, students, and educators. This article provides a review of both recent and landmark studies describing the cognitive and academic impact of sickle cell disease and discusses the role of the school nurse as an advocate, liaison, and educator. KEY WORDS: absenteeism, academic failure, cognitive impairment, sickle cell disease, silent cerebral infarction, stroke INTRODUCTION School nurses face a multitude of tasks with the rising rate of students diagnosed with chronic illnesses. Students with sickle cell disease (SCD) have a genetically acquired blood disorder that makes their chronic illness relatively invisible. These students are usually mainstreamed into the regular classroom within the school system, but as many as 50% of students with SCD will fail at least one grade (Javid, 1999). It has been reported that there is a lack of knowledge among educators concerning the academic implications of the direct and indirect complications from SCD ...

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