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THE HEMOPHILIA BULLETIN

Source: www.carolkasper.com
Topic: Hemophilia
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Sort Desciption: July, 2nd issue of 2006. Carol K. Kasper, Orthopaedic Hospital, Los Angeles ... The newsletter started in 1981, when I visited the excellent hemophilia centers in Milan, in Bonn and ...

Content Inside:
July, 2nd issue of 2006. Carol K. Kasper, Orthopaedic Hospital, Los Angeles, CA 90007; carolkasper@hotmail.com; www.carolkasper.com Thanks to NovoNordisk for their unrestricted educational grant supporting this issue! The last issue of the Bulletin This year, the Bulletin had its 25th birthday and I had my 70th. Its a good place to stop. The newsletter started in 1981, when I visited the excellent hemophilia centers in Milan, in Bonn and at Londons Royal Free Hospital and came home full of wonderful new ideas about DDAVP, porcine factor VIII (FVIII), pasteurized FVIII, and induction of immune tolerance. I sent notes to colleagues who might be interested. The list grew. This issue will go to over 4000 recipients around the world. Im grateful for the support of the Crippled Childrens Guild of Orthopaedic Hospital in the Bulletins early years, for the bequest of Moses Foster de Masters that carried me through the middle years, and for the support of several pharmaceutical companies in recent years. Thanks also to Debbie Ramires for keeping the address list and to Francisco Hernandez for proof-reading and for envelope-stuffing and mailing. Thank heavens for the Internet, where information now can be disseminated rapidly and cheaply. World Federation of Hemophilia, Vancouver, May; Scientific & Standardization Committee, Oslo, June Some topics were covered in both places; notes are blended. Mark Skinner, president of WFH, charted recent achievements. Emphasis is being placed on diagnosis, rightly, because thats the first step. In the past three years, over 5000 new patients have been diagnosed. I was also delighted to hear that the improvements in hemophilia care brought about in Chile and Uruguay, thanks to Project Access, have been sustained. WFH remains a highly effective and thrifty health-improvement organization. I attended few of the musculo-skeletal sessions at WFH, having covered them well previously. Brendan E ...

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